Lisa Kee, Padmatara, and Dawn came with me to meet Dr. Tavakoli today. It was great to have them there, and recording it was very helpful too. Here are some things we talked about:
First question was: Dr. Patel was emphatic about cancer in the bones being incurable. Why did it go away?
Gynecological cancers in the bone generally are not curable, unlike, for example, metastatic testicular cancer, which is very sensitive to chemo (90% survival rate.) Twenty-five percent of gynecological cancer patients (I think this means advanced stage) don't make it to five years, and that's often with continuous treatment. The cancer could still be in the bone, but it's not detectable now. With serial images every six months you would have more information.
Second question: Why is it important that I have 'vaginal cancer metastasized to the lungs' rather than 'lung cancer'?
Treatment is based on cancer of origin. Because of this, as before, there isn't great data about how well this chemo will work with vaginal adenocarcinoma. Have to just see how it goes. Carbo and Taxol are also used to treat lung and ovarian cancers.
|Oncology waiting room|
As for thesecondopinion.org, I'm going to consult with the director, a medical oncologist. He will then decide if I would also benefit from waiting to see a full panel in July.
P.S. Turns out the cement graffiti outside our door featured on the left was written by none other than Lisa Kee!
*Neutropenia is an abnormally low level of neutrophils in the blood. Neutrophils are white blood cells (WBCs) produced in the bone marrow that ingest bacteria. [http://medical-dictionary.thefreedictionary.com/]